PIPEDA: Who Gets to See Your Health Information (and Who Doesn't)
Your health data is treated as extra-sensitive under Canadian privacy law. Here's what organizations actually have to tell you, and what you can demand.
This is general information about your rights, not legal advice. Your situation may be different. Talk to a lawyer in your area for advice specific to you.
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PIPEDA is Canada's federal privacy law for private-sector organizations, and health information gets the highest level of protection under it — this matters a lot right now, when you're sharing medical details with employers, insurers, and platforms. Your rights, plainly: 1. Right to know — they have to tell you why they're collecting your information, before or when they collect it 2. Right to consent — meaningful consent is required, and for health data specifically, it needs to be explicit (not just a buried checkbox) 3. Right to access — you can request to see exactly what personal information an organization holds on you 4. Right to correct — if something's wrong, you can demand it be fixed 5. Right to withdraw consent — you can pull consent at any time (with some legal exceptions) Worth knowing: some provinces have their own stricter rules that apply instead of PIPEDA — Quebec's Law 25, Alberta's PIPA, and BC's PIPA. If an organization mishandles your health information: 1. Review their privacy policy first — see what they claim to do 2. Ask directly what information they have and why 3. Request corrections if anything's wrong 4. If they won't cooperate or you suspect a violation, file a complaint with the Office of the Privacy Commissioner of Canada — it's free and doesn't require a lawyer
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This is general information to help you get oriented — not legal advice. Rules vary by where you live, so double-check the specifics with a professional you trust.
